Time Michael was at Home

Michael was at home and he could still manage a bit we had to help him as his motor skills we going. I had help from every one and it was amazing how a family could come together in such a crisis and help Michael. It wonderful to hear laughter with everyone and we have in the back ground either Star Trek( Michael’s Fav) and Loony Tunes cartoons ( Michael and I loved them we bought them all on DVD), We all got him his favorite things this time was all abut him. He would be in the living room and they would be playing guitars and they were even writing a song. I even had my bed beside him so I could hold his hand and let him know I was there for him. This is what its all about when you are married you are there through think and thin, As time went on he would change and the Doctors and would come and check on him. He would joke with Dr’s and then thought he was just so Charming .Michael was randomly calling people he knew just wanted to talk to them all, Then he couldn’t do that anymore and things changed and then I had to make the decision with his brothers about the Hospice. I knew if I made this decision he would never come home. I tried to put it off but that was being selfish and he needed the professionals to handle so we can all be there for him

I’m talking about this part because for me my whole world and and my whole life was Michael. We had a love that was true love and we believed we were sent to help each other in our lifetime. I would just look at him and would he had the best heart and love for his family and for me, Why was this happening. I would do lot of thinking by myself and I just couldn’t wrap my head around what was happening this F!@#$%$%ing Disease was taking my best friend and soul mate a brother a son and also Bandmate. The guitar that he played was silent now but his nephew would keep playing for him to hear it

Published by Grieving Your Soul mate

This is about me losing my Soul Mate to a very rare disease called Creutzfeldt-Jakob and how I'm coping with life without him.

Leave a comment