When Michael was diagnosis with Crezfeldt Jacob Disease I though that they would find someway to help him. When I heard Michael ask the doctor about this Disease “He asked what quality of life will I have ?” and the Doctor said “Im sorry Michael You don’t Have One” He looked at me I looked at him. We didn’t say anything. I was dying inside and didn’t know what to expect.
He spent a week in the hospital I would go and stay with him he couldn’t walk very well and he was also pretty stubborn about certain things. He would play his guitar with this nephew. he Asked The Band Member’s would like to tour the hospitals so he could pay the house off for me. We also had some special visitors who would also come and see him. They would sit and talk to him.They will always have specials place in my heart ( they know who they are). All of his brothers and Nephews would help me get the house ready for him to come home. I was so happy about that I just wanted to take care of him forever. I would look at him and just loved him so much. I would ask myself why ?why? Why?. He had a good heart and loved his family and he loved me.
The reason I’m talking about this part of this is were I thought that he was going to get better in my own mind ( I have never told anyone this) but then i would go back to reality when something would happen and they make me realize I’m possibly going to lose my husband. I didn’t know how to accept this I just wanted him to stay in the house forever. I was feeling I cant cry because if I cry i will make him feel bad I didn’t want him to feel bad about anything I just wanted him to enjoy his life his brothers and make music with them I would take care of the rest. Inside my heart was crushed and I would cry when I was alone
Creutzfeldt-Jakob (KROITS-felt YAH-kobe) disease, also known as CJD, is a rare brain disorder that leads to dementia. It belongs to a group of human and animal diseases known as prion disorders. Symptoms of Creutzfeldt-Jakob disease can be similar to those of Alzheimer’s disease. But Creutzfeldt-Jakob disease usually gets worse much faster and leads to death.
Symptoms
Creutzfeldt-Jakob disease is marked by changes in mental abilities. Symptoms get worse quickly, usually within several weeks to a few months. Early symptoms include:
- Personality changes.
- Memory loss.
- Impaired thinking.
- Blurry vision or blindness.
- Insomnia.
- Problems with coordination.
- Trouble speaking.
- Trouble swallowing.
- Sudden, jerky movements.
Death usually occurs within a year. People with Creutzfeldt-Jakob disease usually die of medical issues associated with the disease. They might include having trouble swallowing, falls, heart issues, lung failure, or pneumonia or other infections.
In people with variant CJD, changes in mental abilities may be more apparent in the beginning of the disease. In many cases, dementia develops later in the illness. Symptoms of dementia include the loss of the ability to think, reason and remember.
Variant CJD affects people at a younger age than CJD. Variant CJD appears to last 12 to 14 months.
Another rare form of prion disease is called variably protease-sensitive prionopathy (VPSPr). It can mimic other forms of dementia. It causes changes in mental abilities and problems with speech and thinking. The course of the disease is longer than other prion diseases — about 24 months.
How Creutzfeldt-Jakob disease develops
The risk of getting CJD is low. The disease can’t be spread through coughing or sneezing. It also can’t be spread by touching or sexual contact. CJD can develop in three ways:
- Sporadically. Most people with Creutzfeldt-Jakob disease develop the disease for no apparent reason. This type, called spontaneous CJD or sporadic CJD, accounts for most cases.
Grieving Your Soul Mate 